Leadership Greater Hartford Connects More Than 400 Volunteers with Nonprofit Board Service

In just over six years, more than 400 people in the Greater Hartford area have joined the board of directors of local nonprofit organizations, through an innovative matching program run by Leadership Greater Hartford.  The program has proven both popular and successful, and is seen as a win-win for the nonprofit organization in need of expertise and individuals looking for ways to contribute to the well-being of the community. The Leaders on Board program has matched 404 individuals – from young professionals to retirees - with more than 100 nonprofit organizations since January 2009.  The program attracts individuals with an interest in serving on a board, and looking to develop their leadership skills and serve the community.  Potential board members receive training in nonprofit organizational structure and management, are introduced to the role and responsibilities of board members and are encouraged to explore their own individual skills. The training session provides the foundation for effective board service. 

Leaders on Board, unique in Connecticut and perhaps the largest initiative of its kind in the region, provides a critical connection for nonprofit organizations who are looking for board members that have been trained in the basics of board membership and have expressed an interest in serving on a nonprofit board.  In some cases, individuals’ employers encourage such community activism, in others, the person is seeking to give back to the community or broader their involvement in issues that are of particular interest.  Corporations and businesses participate in the Leaders on Board program by offering board governance training to encourage their employees who are interested in serving the community.

The program works in a round-robin matching session, where representatives of nonprofit organizations conduct brief one-on-one interviews.  At the end of the session, both the individual and the organizations indicate where they think there might be a match.  If there’s agreement, there are further follow-up conversations to determine if selection to a specific board should go forward.  Often, the answer is yes.

“I decided to participate in leaders on Board because I was looking for a way to become a board member on a local, small to medium-sized nonprofit organization," explained Bill Valentine, Donor Relations Manager, United Way of Central and Northeastern CT. "Leaders on Board is the ideal way to learn the basic information about the responsibilities of being a board member and to learn about the organizations that are looking for new board members.”

At times, prospective board members learn of nonprofit organizations they had not been aware of or knew little about.  For people new to the region, and even those who have spent a career in Greater Hartford, the variety of nonprofit organizations, and they work they pursue with various populations, can be eye-opening.  The list of organizations that have placed members on boards through the Express Match process is quite impressive – a who’s who of community organizations.

In 2013, the Association of Leadership Programs, a national organization with affiliates across the country, presented Leadership Greater Hartford with its first “Excellence in Innovation” award for the implementation and success of the Leaders on Board program.  Recent years have also seen greater diversity among prospective board members, and interest by nonprofit organizations in having boards that more closely reflect the diversity of the community they serve.

"I had been considering pursuing board membership for a few years when The Junior League of Hartford offered its members a chance to participate in Leaders on Board," recalled Patricia Sasser, Dean of Students at Loomis Chaffee.  "The Leaders on Board orientation provided great information on what a prospective board member needs to know about board service; it definitely set me up for success.  I felt prepared and excited when I attend my first Leaders on Board Express Match. Having a chance to speak with different organizations about their mission and purpose opened my eyes to all the different types of organizations I could support. I found several that really spoke to my heart and was excited when I was matched with an organization I admired."

Among those who have recently accepted board of directors positions, following the most recent Leaders on Board session:

• Ann Means - Hartford Preservation Alliance
• Chris Whelan - First Choice Health Centers
• Sue Murphy & George Montowski - Hebrew Health Care
• Nancy Frede - Hartford Knights Youth Foundation
• Jessica Dansereau & Veda White - Lupus Foundation of America - CT Chapter
• Veda White - Trinity Academy
• Michael Fournier, Richard Moriarty and Patrick Garrity - Kinsella Arts, Inc.
• Chris Thomas - Mental Health Association of CT
• Jim Barrett - St. Philip House
• Bernard Jenkins, Meri Horowitz and Gary Brochu - Coram Deo Recovery, Inc.
• Richard Moriarty and Patrick Garrity - Kinsella Arts, Inc.
• Karen Adamson, Maia Brooks, and Anthony Viggiano - Project Genesis
• Aaron Clay and Jasmine Baten - West Hartford YMCA

Leaders on Board operates with support from the Hartford Foundation for Public Giving.  For more information, contact Mae Ryan Maloney at 860.951.6161 x1900 or email Mae.Maloney@leadershipgh.org. The mission of Leadership Greater Hartford is to develop, connect and inspire diverse leaders to build strong and vibrant communities.

https://youtu.be/vuXF7lKGuew

New Leadership, Funds Preserved at Connecticut Trust

It has been a busy week for The Connecticut Trust for Historic Preservation.  The organization has announced the hiring of a new Executive Director – the first in nearly two decades – and seen its lobbying efforts pay off at the Capitol as the planned government raid of its funds has been stalled. The Trust has hired Daniel Mackay to be the organization’s Executive Director, to succeed retiring Executive Director of eighteen years, Helen Higgins. He will be responsible for furthering the Connecticut Trust’s mission of preserving, protecting and promoting buildings, sites, structures and landscapes that contribute to the heritage and vitality of Connecticut communities.

"We are extremely fortunate Helen Higgins has been our Executive Director for the past 18 years. We cannot thank Helen enough for strong leadership and the advances the Trust has made during her tenure," said Board Chairman, Charlie Janson.

“We are equally fortunate in bringing Daniel Mackay to the Trust. Dan has tremendous experience, vision and a passion for historic preservation. We also know that he will nurture the relationships of the Trust with the Governor's office, our legislature and the other organizations we partner with. We are very excited for a bright future led by Daniel.”

That future began with good news.  Governor Malloy had proposed a 100-percent sweep of Community Investment Act Funds from Jan. 1, 2016 to June 30, 2017 and in his deficiency bill proposed an additional sweep of $15 million.  The budget that was approved Wednesday by the state legislature added back 50 percent of the cut that begins on Jan. 1, officials said.  In addition, there is no sweep of funds to address the deficiency.

Mackay will come to Connecticut after fifteen years with the Preservation League of New York State as Director of Public Policy, where he was the lead advocate for implementation and expansion of the New York State Rehabilitation Tax Credit program, with key legislative victories along the way. He was also the lead author of extensive revisions and expansion of New York State model historic preservation law for local municipalities between 2012 and 2014.  He holds an undergraduate degree in Geography from the University of Chicago and a Masters in Environmental Education from Lesley College.

Upcoming on the CT Trust calendar is a guided ride through historic Ivoryton, Essex and Deep River on June 13 for the Preservation Pedal, with a few scenic stops including a brunch break at Whistle Stop Cafe in Deep River before returning to Ivoryton. The event is a fundraiser and bike tour, honoring the organization's 40^th anniversary.

The Connecticut Trust is a nonprofit, member supported organization, one of the foremost statewide preservation organizations in the country. The organization provides technical assistance, financial assistance, workshops, publications and advocacy in preservation matters and issues. The Trust receives daily requests for technical restoration information including the names of contractors, architects, consultants and craftsman who have experience with historic buildings, and has compiled a Restoration Services Directory for use by those seeking restoration professionals and suppliers in Connecticut and surrounding areas.

National Voting Begins as Three Local Community Programs Try to Win $25,000 Grants

Three Connecticut-based “causes” are among 200 across the nation currently vying for one of 40 grants of $25,000 to be awarded by State Farm, with voting now open to the public via Facebook. Regional Youth Adult Social Action Partnership in Bridgeport, Northwest CT YMCA: Winchester Youth Service Bureau, and Charter Oak Cultural Center in Hartford – BOTS Pots initiative are the three organizations whose programs are in the running for the grants.   Individuals may vote up to 10 times each day from May 14 through June 3.  The Top 40 winners will be announced on June 16.

The State Farm Neighborhood Assist began in 2012, and the annual program has three phases. First, Facebook users submit causes that they think deserve a $25,000 grant. Next, the State Farm® Youth Advisory Board narrows down the submissions to the top 200. Finally, Facebook users vote to select the top 40. Voting opened this week at https://apps.facebook.com/sf_neighbor_assist/  The Facebook site includes a “leaderboard” indicating the top ranked programs based on public voting.

Details of the three Connecticut programs, as featured on the State Farm website:

Charter Oak Cultural Center in Hartford – BOTS Pots initiative

BOTS Pots-- named for Beat of the Street, Charter Oak Cultural Center’s “street” newspaper written by individuals experiencing homelessness and their allies-- places large potted organic vegetable plants throughout the City of Hartford. Individuals who are experiencing homelessness are hired and trained to tend the pots and the vegetables are provided for free to anyone in need, addressing hunger in Hartford. In addition, local artists volunteer to transform the pots into public art.

As far as we know, the program is the only one of its kind in the country, although the model has been sought out by other cities asking how they can bring it into their communities. BOTS Pots brings food, jobs and art to Hartford and provides much-needed work experience and a resume line item for individuals experiencing homelessness. Charter Oak Cultural Center hires, fully trains and compensates members of the homeless community to tend the pots, providing much-needed work experience and a resume line item. Because of the cycle of homelessness, members of this community often have a great deal of difficulty in obtaining job experience, another key job requirement for future work. The compensation they receive for their work tending BOTS Pots, in the form of gift cards, allows them to purchase food, clothing suitable for a job interview and other necessities to help them move to the next level of independence.

Regional Youth Adult Social Action Partnership in Bridgeport

The mission is to keep teens safe and healthy from the dangers of alcohol by empowering them to become positive change agents.  Community need this cause addresses:  Alcohol is the most commonly used drug among teens. Almost half of young people have gone to at least 1 drinking party during the year. Making alcohol less accessible is a prevention strategy that works! It is important that alcohol is kept out of the hands of people who are under 21. In Connecticut, on average youth pick up their first drink before their 12th birthday. Consider that- they take those first sips even before most begin middle school?! If youth pick up a drink before age 15, they are 4 times more likely to have alcohol dependency issues later in life. As teens get older, alcohol puts them at risk of other dangerous situations. By their senior year, 35 percent of high school students say they have been drink at least once in the past 2 weeks.

Northwest CT YMCA: Winchester Youth Service Bureau

The mission is to create future leaders by fostering independence, confidence, and build self-esteem in at-risk youth in our community. In Winchester, there is a need to support secondary school students. At this age, there is a significant rise in the amount of severe disciplinary offenses; this includes reports of substance use, assault, weapon, and inappropriate sexual behavior. The graduation rate is average. However due to the vast low SES population in the area, of the students who graduate, only 78% of students go onto higher education. This is 8.8% below the average and consequently the students are 11.6% more likely to go from high school to the work force. The hope is to create programs to support this age group; currently there are no positive youth programs that can guide them to having a positive adolescent experience. In this program, students will be able to build independence, confidence, and self-esteem through team-building, service projects, and positive social activities. Students will be given the knowledge to help them shape their own futures and foster their personal, academic, and social growth.

Ten CT History Organizations Honored for Innovative, Effective Initiatives

When the Connecticut League of History Organizations (CLHO) hosts its annual conference and awards ceremony in Meriden on June 1, ten local organizations will be honored for their effective work in connecting state residents and history. The theme of the all-day conference is “Making History Collections Relevant in a Modern World.” Sessions will explore the many traditional and non-traditional ways that museums, historical societies, historic houses, and archives make their collections accessible and relevant to their communities.

The conference, which is open to the public,  includes an awards ceremony, as the CLHO presents Awards of Merit to institutions and individuals who demonstrate the highest of professional standards and who enhance and further the understanding of Connecticut history.  Along with opportunities for networking, there will be speakers, panel discussions, and how-to practical presentations.

The awards will be presented to the Wethersfield Historical Society, Weslyan University Press/Connecticut Explored/The Amistad Center, Norfolk Historical Society, Mattatuck Museum (Waterbury), Lyman Allyn Art Museum (New London), Kent Historical Society, Florence Griswold Museum (Old Lyme), Cheshire Historical Society, Bated Breath Theatre Company (Hartford), and Archaeological and Historical Services, Inc. (Storrs). [See details below]

Keynote speaker Rainey Tisdale is an independent curator specializing in city history. Tisdale led the consortium of local museums, libraries, and archives in collecting and interpreting the 2103 Boston Marathon Bombing, with emphasis on programming for the one-year anniversary in April 2014.

Tisdale’s most recent book, Creativity in Museum Practice, helps museum professionals unleash creative potential throughout their institution. She will discuss “The Poetry of Objects,” a wide-ranging meditation on the power of objects to move, inspire, and build community.

The awards ceremony features an award-winning performance by Bated Breath Theater Company, "Freedom In Three Acts." Admission to the conference is $75 per person, with discounts for members, students, and early registration, and covers all events of the day and lunch. Reservations  can be made at www.CLHO.org.

For over 60 years the Connecticut League of History Organizations has strengthened and built connections among those who preserve and share the stories and objects of our past by sharing knowledge and experience, and promoting best practices.

https://youtu.be/LM5xtk23cv0

The CLHO Awards of Merit will be presented to:

Archaeological and Historical Services, Inc. - Storrs, CT

Publication - Highways to History: The Archaeology of Connecticut’s 18^th-Century Lifeways

Highways to History is a publication describing the lives of ordinary residents in 18^th century colonial Connecticut. Based on a combination of historical and archaeological investigations at four buried homesteads, the book opens a new window into how people in Connecticut lived in colonial times. Distributed around the state, and made available online, Highways to History provides an accessible and engaging account of how ordinary colonial Connecticut citizens lived, and demonstrates the strength of combining archaeological and documentary evidence.

Bated Breath Theatre Company (a collaboration with The Amistad Center for Art & Culture) Hartford, CT

Educational Program - Freedom: In 3 Acts

Freedom: In 3 Acts is a collaborative performance between The Amistad Center for Art & Culture and Bated Breath Theatre Company. This innovative program responded to and amplified The Amistad Center’s exhibition, Emancipation! The three act performance incorporates song, movement and narrative to explore the struggle for freedom and justice for African Americans. Since its initial performance, Bated Breath Theatre Company has performed Freedom: In 3 Acts at a variety of venues, using its innovative and engaging approach to bring the original exhibit off the walls and out of the exhibit cases to engage audiences around Connecticut.

Cheshire Historical Society - Cheshire, CT

Educational Program - Cheshire Heritage Tour – An App for Mobile Devices

Looking to bring a traditional walking tour of the center of Cheshire alive, The Cheshire Historical Society developed an app that appeals to people of many ages and interest. Free to download, the app combines humor, seldom-seen images from the Historical Society’s collection, and contemporary photos and maps to guide the user around the center of town. With the help of two characters, Alonzo the Adventurer and Emmy, the Magical History Box, the Cheshire Heritage Tour keeps visitors engaged while learning about the history of the area.

Florence Griswold Museum - Old Lyme, CT

Project - Thistles and Crowns: The Painted Chests of the Connecticut Shore

In 2014 the Florence Griswold Museum presented the exhibition Thistles and Crowns: The Painted Chests of the Connecticut Shore to highlight the distinctive beauty and historical significance of a group of painted chests made in Old Saybrook and Guilford, Connecticut between 1700 and 1740. Bringing together a selection of these chests from six museums for the first time since 1950, the exhibit asked visitors to look at aspects of construction, decoration, use and history. Accompanied by a full-color catalog, Thistles and Crowns highlighted stories about Connecticut’s artistic, cultural, and historical legacies that can be found in unexpected places.

Kent Historical Society - Kent, CT

Project - Iron, Wood, and Water: Essential Elements of the Evolution of Kent

As the site of the second most valuable iron ore deposit in Connecticut, Kent became a desirable place to live for iron works, and the impact of their activities had deep influence on the evolution of Kent into the community it is today. While much scholarly research explores the technicalities of the iron making process and the entrepreneurs who ran the industry, the exhibition, Iron, Wood and Water: Essential Elements of the Evolution of Kent told the story of the common men who toiled daily in the mines, at the furnaces, and deep in the woods. It was these workers who left impressions on the community and played a large role in transforming Kent first from an untamed wilderness to a bustling industrial town, and later to a community of dairy farmers and finally to the home for artists and writers that it is today.

Lyman Allyn Art Museum and Stephen Fan, Guest Curator - New London, CT

Project - SubUrbanisms: Casino Company Town / China Town

In 2014 the Lyman Allyn Art Museum opened Suburbanisms: Casino Company Town/ China Town. Using a variety of approaches the exhibit documented and historicized the development of a suburban Chinatown surrounding the Mohegan Sun casino in Connecticut. Built up by a large number of Asian casino patrons and workers – many recent immigrants - this innovative exhibition presented an under-explored topic in Connecticut’s and the nation’s history. In addressing key themes in suburban, housing, labor, and immigrant history, the exhibit used history to bridge cultural divides and to question the future ecological, social, and economic sustainabilites of the ever-changing American suburban ideal.

Mattatuck Museum - Waterbury, CT

Project – The Way We Worked – Connecticut At Work

As one of seven venues selected to host The Way We Worked, a traveling exhibition created by the Smithsonian Institution in 2014, the Mattatuck Museum sought to create a parallel group of exhibitions and a series of programs to bring the story home to Connecticut audiences. Know as Connecticut At Work, the resulting local exhibitions, film series, lectures, and programs engaged broad and diverse audiences and addressed issues of immediate concern. Through providing a local backdrop for the Smithsonian’s exhibition, Connecticut At Work merged the national story with the regional one.

Norfolk Historical Society - Norfolk, CT

Project - From the Mills to the Main Street: The Irish in Norfolk

From the Mills to Main Street: The Irish in Norfolk was an inventive interpretive exhibition mounted by the Norfolk Historical Society in 2014. Using historical documents, artifacts, photographs, and ephemera, many not previously on view, the exhibit explored the contribution and assimilation of the Irish in the town of Norfolk from 1836 to 1920. The well-attended exhibit and related programming that included lectures, gallery talks, and walking tours, brought to life the importance of a significant immigrant group to the economic and cultural landscape of Norfolk.

Wesleyan University Press, Connecticut Explored, The Amistad Center - Middletown, CT

Publication - African American Connecticut Explored

African American Connecticut Explored is the first book published for a public history audience that provides the long arc of the African American experience in Connecticut with an emphasis on the African American perspective. Through more than 50 essays by more than 30 of the state’s leading historians, curators, and writers, the book covers a wide range of topics. Published by Wesleyan University Press, it was developed by Connecticut Explored, The Amistad Center for Art & Culture, and representatives from the State Historic Preservation Office.

Wethersfield Historical Society - Wethersfield, CT

Project - Castle on the Cove: the Connecticut State Prison and Wethersfield

Mounted in 2014, and on view through 2016 the exhibition Castle on the Cove: the Connecticut State Prison and Wethersfield, explores the Connecticut State Prison during its years of operation between 1827 and 1963 in Wethersfield, Connecticut. The prison was an integral component of the town’s identity during these formative years as Wethersfield transitioned from rural town to suburb. Exploring both previously undocumented and often requested materials the exhibit looks at the prison from the perspectives of the inmate, employee, and local resident to present the history of the prison within a broad context and to encourage visitors to consider the impact of the prison on these three groups.

Trees Sprouting Across Connecticut, 19 Municipalities Lead the Way

Tree City USA is an honor earned by cities and towns that meet four standards set by the Arbor Day Foundation and have their application approved the State Forester. Connecticut currently has 19 municipalities with the Tree City USA designation, which cover 31 percent of the state’s population. According to the Arbor Day Foundation, Connecticut’s longest running Tree City is Fairfield, which recently surpassed 26 years.  The largest community is Bridgeport, the smallest, by population, is Brookfield

The four standards are having:

• A tree board or department
• A tree care ordinance
• An urban forestry program with an annual budget of at least $2 per capita
• An Arbor Day observance and proclamation

The other Tree City USA communities in Connecticut are Branford, Danbury, East Hartford, Groton, Hartford, Middletown, Monroe, New Canaan, New Haven, Norwalk, Ridgefield, Southbury, Stamford, West Haven, Wethersfield and Wilton.

Norwalk and Wethersfield, for demonstrating a higher level of tree care, have received Growth Awards from the organization.  Overall, there are 3,400 Tree City USA honorees across the country, with a combined population of more than 140 million.

Annual participation as a Tree City USA community provides the opportunity to educate people who care about their community about the value of tree resources, the importance of sustainable tree management and engage individuals and organizations in advancing tree planting and care across the urban forest.

The organization also offers on-line education courses for individuals interested in learning more about trees, or about serving in a citizen advisory role in their local community.

The Arbor Day Foundation indicates that an effective tree program can:

• Reduce costs for energy, storm water management, and erosion control. Trees yield up to three times their cost in overall benefits to the city, averaging $273 per tree.
• Cut energy consumption by up to 25%. Studies indicate that as few as three additional trees planted around each building in the United States could save our country $2 billion, annually, in energy costs.
• Boost property values across your community. Properly placed trees can increase property values from 7-21% and buildings in woodedareas rent more quickly and tenants stay longer.

The Arbor Day Foundation also has a campus program, designating colleges and universities as a Tree Campus USA.  The University of Connecticut is the only college in Connecticut to earn the designation.

The state Department of Energy and Environmental Protection's Urban Forestry Program is available to work with any community interested in exploring whether it qualifies as a Tree City USA and what is needed to earn that designation.

DEEP officials indicate that “many communities might be surprised at how close they are.”  Applications for next year's honor are due in December.  The program was initiated by the Arbor Day Foundation in 1976.

https://youtu.be/ol2_IcwaeDI

Support of American Heart Association Brings Benefits to Connecticut

The Greater Hartford Heart Walk, a noncompetitive 5K walk held annually each fall by the local affiliate of the American Heart Association, is one of many similar endeavors around the state by nonprofit organizations seeking to raise awareness and raise funds – and one of three organized annually by the American Heart Association in Connecticut. What is often overlooked, especially when the sponsoring organization bears a well-known national name, are the array of benefits that result close to home.   The American Heart Association is a case in point.

Cardiovascular diseases and stroke are the #1 cause of death in Connecticut. Last fall, just over 1,500 walkers at the Greater Hartford walk helped to raise nearly $190,000 to support research, advocacy and awareness of cardiovascular disease and stroke.  That money does not simply disappear into a giant national pool of funds – much of it finds its way back to Connecticut.

The organization currently supports 43 research studies in Connecticut with awards totaling $9,300,533, officials report.  The grants and fellowships help to advance discovery, interpretation and delivery of new knowledge to spur improvements in cardiovascular health.  Among those supported by awards from the American Heart Association are researchers on the University of Connecticut campus in Storrs, the UConn Health Center in Farmington, Yale University and the Yale University School of Medicine.

The organization’s Greater New Haven Heart Walk will take place on Saturday, May 2 at Savin Rock. The event is hoping to raise over $340,000.  [Walk registration will begin at 9:00 a.m. and the walk will kick off at 10 a.m. with a walk along Savin Rock Beach.]  The Greater New Haven Heart Walk is part of the American Heart Association’s national healthy living initiative, My Heart. My Life. The program focuses on improving nutrition, physical activity and children’s health, helping individuals and families understand how to make incremental changes for a substantial long-term health impact.

The American Heart Association also urges employers to “create a culture of physical activity and wellness so that we may all live longer, heart healthy lives.”  The local chapter, based in Wallingford, works with Connecticut corporations to become a Fit Friendly Worksite.

Through the Fit-Friendly initiative, the American Heart Association provides free tools for worksites and employees including a Healthy Workplace Food and Beverage Toolkit, walking and physical activity programs, worksite wellness materials, and more.  Eligible worksites can then receive recognition by the American Heart Association at local events and in recognition program communication materials including an Annual Honor Roll published on the organizations website and other amenities.  In Connecticut, 40 companies have been designated as Fit Friendly Companies and in Massachusetts, 78 companies are committed to better employee health.

“More than two-thirds of American adults are overweight or obese putting them at risk for heart disease and stroke”, said American Heart Association Connecticut and Western Massachusetts Executive Director Dina Plapler. “Making healthy changes in the workplace, where many adults spend much of their day, is an important way to help people be healthier”.

The annual Greater Hartford Go Red For Women Luncheon, another well-attended education and fundraising event, celebrated its 10th anniversary this year.  The March 18 event at the Connecticut Convention Center included survivor speaker, Leigh Pechillo.  A native of Connecticut, Leigh experienced sudden cardiac arrest on Mother’s Day, May 11, 2014.  She was fortunate that her husband knew CPR and helped to save her life.  Her husband, daughter and son were presented with a Heart Saver Award by American Heart Association President, Nancy Brown at the event.  The event raised over $400,000 to benefit women’s heart health.

The Go Red For Women initiative is dedicated to making an impact in the community through education and fundraising to fight the number one killer of women, heart disease. Heart disease and stroke account for 31.1 percent of all female deaths in Connecticut and on average, nearly 13 women die from heart disease and stroke in Connecticut every day.

For more information on the Greater New Haven Heart Walk go to www.newhavenheartwalk.org. Other Heart Walks taking place in Connecticut this year include the Rocky Neck Heart Walk on Sunday, September 27 at Rocky Neck State Park and the next Greater Hartford Heart Walk on Saturday, October 3.  For more information on these events and more, visit www.heart.org/connecticut.

Hospital Outreach Program, New Website and Video Advance Mission of The Hole in the Wall Gang Camp

The Hole in the Wall Gang Camp in Ashford, Connecticut began in 1988 as a way for seriously ill children, including those with cancer, to “raise a little hell,” as founder Paul Newman described it – a time and place when kids could simply be kids, without being self-conscious about their ongoing medical needs.  Twenty-seven years later, it is much more than a summer camp, offering a robust range of programs year round, in Connecticut and beyond. To tell that story, and increase public awareness of the array of programs available to children with acute medical needs, the Camp has launched a newly redesigned website (www.holeinthewallgangcamp.org) that eases navigation through the various program offerings, and produced a new video that highlights the range of activities and impact.

Among the programs highlighted is the less widely known Hospital Outreach Program (HOP), one of a number of programs that have blossomed in recent years to extend the mission and impact of The Hole in the Wall Gang Camp into communities to reach more children.

Through one-on-one interactions and group activities, HOP “brings Camp’s unique summer programming and spirit to hospitals and clinics. Whether working bedside, in playrooms or outpatient clinic settings, our interactions and activities with children and families include arts & crafts projects, and interactive games specifically adapted for use in the medical setting, as well as other Camp-inspired programming and events. Just like at Camp, all interactions are guided by the child’s choice and are child-driven,” the website explains.

Responding to the fact that children in the hospital often feel isolated, fearful, stressed, and uncertain because of their illnesses, the Hospital Outreach Program “brings the hopeful, playful spirit of The Hole in the Wall Gang Camp to children, families, and their caregivers in the hospital setting, at no cost, year-round on a weekly basis.”

The HOP program has expanded to 35 medical facilities in Connecticut, Massachusetts, New York, New Jersey and Pennsylvania.  The Connecticut programs are offered at Connecticut Children’s Medical Center in Hartford, Yale-New Haven Hospital, Yale Pediatric Hematology and Oncology Clinic in Trumbull, and the Yale-New Haven Hospital’s Bridgeport Campus.

The HOP Specialists that provide one-on-one sessions visits “have a bachelor’s degree, excellent kid skills, experience developing fun and exciting programming and knowledge of hospitals systems. They attend both a HOP and Hospital Orientation and receive regular opportunities for professional development,” the website points out.

At Children’s Hospital of Philadelphia (CHOP) last fall, the facility was “transformed into Downtown Camp” for a week, as nearly 30 Camp staff and volunteers and more than 60 CHOP volunteers provided five full days of Camp programming. In all, there were “approximately 800 healing experiences with children and families throughout the week, bringing the safety, respect and love of Camp to many families” in Philadelphia.

Building on the success of the week, the Hospital Outreach teach is looking ahead to similar events across the network of partner hospitals.

Among the other programs offered during the year, in addition to the centerpiece Camp experience, are CampOut, which brings the Camp experience to campers in their own hometowns, weekend programs in Ashford in fall and spring, and Hero’s Journey for campers who have aged out of the summer program.  In addition, programs are offered for parents, caregivers and siblings of children participating in The Hole in the Wall Gang Camp.

http://youtu.be/P2516LEl6AM

CT Organization Leads Efforts to Increase Awareness of Rare Disesases

Rare Disease Day, observed on February 28, is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention to the special challenges faced by patients and the community. According to the National Institutes of Health (NIH), a disease is rare if it affects fewer than 200,000 people.  Nearly 1 in 10 Americans live with a rare disease—affecting 30 million people—and two-thirds of these patients are children. There are more than 7,000 rare diseases and only approximately 450 FDA-approved medical treatments.  Many rare diseases are chronic and life-threatening.

The National Organization for Rare Disorders (NORD), with national headquarters in Danbury and offices in Washington D.C. and Massachusetts, is a federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Rare Disease Day takes place every year on the last day of February (February 28 or February 29 in a leap year)—the rarest date on the calendar—to underscore the nature of rare diseases and what patients face.

In Connecticut this year, the Morgan Leary Vaughan Fund, Inc. (Morgan’s Fund), an all-volunteer public charity dedicated to Necrotizing Enterocolitis (NEC), will be holding a public awareness event on February 28 in Stratford. The organization’s inaugural event, Illumin8ing Rare, is designed to provide “a moment of reflection and appreciation for all those who have been directly affected by a rare disease,” organizers say, adding “it is an opportunity to celebrate survivors and to share tributes to those who are no longer with us.”

Morgan’s Fund mission is to promote public awareness about NEC and the potentially devastating effects it can have on preemies and their families, and to advance research to prevent, diagnose, treat, and ultimately, cure NEC. Named after Morgan, it celebrates his survival, courage and strength. Morgan and his twin brother were born at 28 weeks, nearly three months early and each weighing less than 2.5 pounds. At four days old, Morgan developed NEC and lost approximately 20 percent of his small intestine. Morgan not only survived but has also thrived since his bout with NEC. The fund is his family’s way of paying it forward.

NEC is an inflammatory disease that leads to necrosis (death) of the intestine. It is predominately due to prematurity and its statistics are startling. NEC is the second leading cause of death in premature infants. NEC is the 10th leading cause of infant death overall. NEC is a rare disease — occurring in approximately 25,000 babies per year in the United States. Despite extensive study, the cause of NEC is uncertain.

Earler this week, the UConn School of Medicine Disabilities Interest Group hosted a Rare Diseases Awareness Event on February 25th at the University of Connecticut Health Center, celebrating individuals who have rare diseases and the many researchers and physicians who are fighting to find cures for these conditions.

To raise awareness nationwide this year, NORD is coordinating a new social media campaign, #1in10, to highlight the 1 in 10 Americans living with a rare disease.  “It’s astounding that there are just as many Americans living with a rare disease as there are people who are left-handed,” said Lisa Phelps, director of marketing and community relations at NORD. “We are launching this campaign to help raise important awareness for this major public health issue and the need for safe, new treatments.”

To help support the #1in10 campaign, NORD has launched the Instagram account, @rarediseasedayUS.  Instagrammers are invited to tag @rarediseasedayUS in their photos and celebrations to share what’s happening now for Rare Disease Day.  Instragram members are invited to use the official Rare Disease Day hashtags #RDD2015 and #RareDiseaseDay and follow Rare Disease Day on Facebook (/RareDiseaseDay.US) and Twitter (@RareDayUS).

For more information about Rare Disease Day, go to www.rarediseaseday.us. or visit NORD’s website, www.rarediseases.org.

http://youtu.be/DpIt8vH6xC8

More US Cities Seek to Join Stamford in Commitment to Energy, Water Usage Reductions in Commercial Buildings

Efforts are underway this year for seven additional cities, from Albuquerque to Ann Arbor, to follow Stamford and seven others across the nation, in making a long-term commitment to reduce energy and water consumption in commercial buildings and reduce emissions from transportation, while increasing competitiveness in the business environment and owners' returns on investment. The “2030 District” initiative began with Seattle in 2011, grew by two cities in 2012, to four in 2013, and then to eight in 2014 when Stamford joined Seattle, Pittsburgh, Cleveland, Los Angeles, Denver, Dallas, and San Francisco as a 2030 District.  Now working towards the designation, in addition to Albuquerque and Ann Arbor, are Detroit, San Antonio, Ithaca, Toronto and Portland.

Across the United States and Canada, 2030 Districts are forming with greater frequency to meet incremental energy, water and vehicle emissions reduction targets for existing buildings and new construction called for by Architecture 2030 in the 2030 Challenge for Planning.  Districts are generally private/public partnerships that commit to dramatic reductions in water consumption and energy and greenhouse gas (GHG) emissions, as well as adaptation and resiliency actions that address projected climatic impacts.

The Stamford 2030 District – launched this past  November - is an interdisciplinary public-private-nonprofit collaborative working to create a groundbreaking high performance building district in downtown Stamford.  Leading the way in the Stamford 2030 District are the Business Council of Fairfield County and Connecticut Fund for the Environment. As Stamford is a coastal city, its 2030 District will also implement a proactive vision to ensure resiliency against projected sea-level rise and storm surge.

The Stamford 2030 District – the first in New England - began with 23 founding members, including 11 property owners and 12 prominent professional and community stakeholders committed to meeting the 2030 Districts goals and targets. High performance buildings have proven track records of simultaneously increasing business and property profitability, reducing environmental impacts, and improving occupant health.

Now in the process of assessing the District’s current building performance levels, one-on-one assistance is provided to property owners and managers in benchmarking their buildings.  In addition, a first-time webinar will be held this week, on Wednesday, February 18, with several founding members highlighting best practices and procedures:

• Jay Black of SL Green Realty/Reckson Properties will offer industry perspective through his experience with benchmarking buildings in both NY and CT.
• WegoWise will present an overview of their web-based software that is able to benchmark a portfolio and provide deeper analytics into a buildings’ energy performance to find savings opportunities.
• Steven Winter and Associates will demonstrate how to take benchmarking a step further with tools such as building energy audits to help identify opportunities within the building.
• New Neighborhoods, Inc. will serve as a case study project in Stamford that has contracted with WegoWise for their benchmarking and will share their experience.

Officials indicate that District Members develop realistic, measurable, and innovative strategies to assist district property owners, managers, and tenants in meeting aggressive goals that keep properties and businesses competitive while operating buildings more efficiently, reducing costs, and reducing the environmental impacts of facility construction, operation, and maintenance.

“These collective efforts will establish the Stamford 2030 District as an example of a financially viable, sustainability focused, multi-sector driven effort that maximizes profitability and prosperity for all involved. Through collaboration of diverse stakeholders, leveraging existing and developing new incentives and financing mechanisms, and creating and sharing joint resources, the Stamford 2030 District will prove the business case for healthy and high performing buildings.”

Property owners and managers are voluntarily committing their properties to Stamford 2030 District goals; they are not required to achieve the District goals through legislative mandates or as individuals.

“Stamford is already a business leader in Connecticut. The Stamford 2030 District will make the city a sustainability leader nationwide,” said Megan Saunders, Executive Director of the Stamford 2030 District. With over 170 million square feet of commercial building space (including 6 million thus far in Stamford), 2030 Districts are rapidly emerging as a new model for urban sustainability, officials indicate.

The Stamford 2030 District provides members a roadmap and the support they need to own, manage, and develop high performance buildings by leveraging Community and Professional Stakeholders, market resources, and by creating new tools, partnerships, and opportunities to overcome current market barriers. This type of collaborative action is not only a strategic undertaking to keep Stamford competitive in the year 2030, but also represents a major investment in Stamford's future and reflects the collaborative nature of our region.

Helping Families Experience Joy of Adoption Is Goal of Start-Up Nonprofit

After six long, challenging and frustrating years, and spending thousands of dollars, a Norwalk couple adopted a child.  And in that moment, a new mother vowed that she would do everything possible to make sure that others would not be prevented from experiencing the joy of becoming a parent due to a lack of financial resources. Today, her daughter is an energetic and engaging 3-year-old and she is following through on the commitment she made to herself, launching a non-profit organization named The Adoption Hope Foundation.  The organization’s mission is to help break the financial barrier of adoption by providing grants to people who hope to build their families through adoption.  The fledgling organization is about one-third of the way towards meeting their initial fundraising goal, with a GoFundMe crowdfunding campaign underway that seeks to raise $10,000 by April 15.

“The thought that some people would not be able to have a family simply because of the financial barrier was heartbreaking to me.  And thinking about babies and children who would not be adopted simply because families couldn’t afford it was unacceptable.  With the average adoption costing approximately $35,000, many qualified, loving families are unable to pursue it due to the high cost.”

It was a long and winding road for Laura Loffredo.  “My husband and I struggled with infertility for six years.  We spent thousands of dollars.  We had eight failed fertility treatments and a miscarriage.  I prayed every night for a baby and the longing inside my heart was unbearable.  I was angry, bitter and heartbroken.  I couldn’t breathe.  I have often referred to this time as the darkest time of my life.”

“When we finally made the decision to adopt, it was like a light in the darkness. The first time I held my daughter in my arms when she was only a few minutes old, I was overcome with emotion,” she recalls.  “Adoption is a beautiful gift.  It is a life altering experience that has allowed me to feel the deepest kind of love imaginable. We believe that every waiting family deserves a child, and every waiting child deserves a family.”

She has spent the past two years researching how to start and run a nonprofit organization, including taking seminars offered by the Connecticut Nonprofit Association.  She has “talked to anyone who would listen – anyone who knew anything about the nonprofit world.”

Some suggested that starting a nonprofit was a tough road, but Loffredo is determined.  “I am compelled to do this - it was a calling.”  She has gained much support and encouragement from long-established nonprofit leaders and professionals in the field in Connecticut. “They have helped me tremendously by constantly answering my start-up questions and supporting me with their expertise in this area.”

More information about the new nonprofit, and their efforts to raise the necessary funds to begin grant-making, are available at www.gofundme.com/adoptionhope or by contacting Laura Loffredo at loffredo.laura@gmail.com

Thinking back on the adoption process, Loffredo recalls “I felt overwhelmed by the extremely high cost of the process.  I felt blessed that we were able to afford it but immediately felt upset thinking about people who could not afford this whose dreams were to have a family. I envisioned an organization that would support adoption by providing grants to people who wanted to build their families through adoption.”

The new business is filing the legal documents required to gain non-profit status, and they expect to have 501c3  in place by June. A website is being developed, and applications for grants will soon be available.  There will be no application fee, so as not to create an additional economic burden on prospective families.  The Adoption Hope Foundation anticipates awarding $5,000 grants by the end of this year.

A home study by a social worker, along with background checks, must be completed before applications will be accepted, and grant awards will be determined by members of a board, based on criteria including need and personal circumstances, such as “why they want to build their family through adoption.” Board members already in place include individuals with backgrounds in finance, law, fundraising, and social work, whose lives have been touched by adoption. Additional board members are now being determined.

In addition to launching the nonprofit organization, Loffredo is writing a memoir about her struggle with infertility and a children’s book about adoption.  She hopes to have both volumes published within a year, with the sale of the books to be used to help support The Adoption Hope Foundation.

A report by the U.S. Department of Health and Human Services Administration for Children and Families, using the most recent data available in 2011, indicated that “approximately 136,000 children were adopted annually in the United States (in 2006 and 2007). This represents a 6-percent increase in adoptions since 2000 and a 15-percent increase since 1990.”

In a 2007 survey, the Department noted that “of the 1.8 million adopted children in the U.S., 37 percent were adopted from foster care, 38 percent joined their families through private domestic adoptions, and 25 percent were adopted internationally.”  They also reported that “overall, parents of 86 percent of adopted children report that their relationship with their child met or exceeded their expectations.”