CT's Rare Disease Report Card Reflects Good Grades, Not-so-Good Grades

Thanks to innovative new treatments, diseases that were once fatal are now being treated as chronic conditions. But these breakthrough treatments will be out of reach for many patients, according to the National Organization for Rare Diseases, because health plans are using deductibles and coinsurance to shift more of the cost of medication onto the patients who rely on those treatments. The national organization, which is headquartered in Danbury and Washington, DC, explains that taken together, those out-of-pocket costs are outpacing wages, and patients are left struggling. To assist patients who find themselves in this difficult situation, several states have passed legislation mandating a limit on out-of-pocket costs for medications. These limits can be applied in different forms, such as a per-drug cap or by mandating a copay-only structure in certain health plans.  Those are just some of the areas of particular interest to NORD, which advocates for patients – and their families – facing the challenges of rare diseases.

What is a rare disease? Any disease, disorder, illness or condition affecting fewer than 200,000 people in the United States is considered rare. It is estimated that 7,000 rare diseases exist, and fewer than 500 have FDA-approved treatments.  Patients with rare diseases are frequently misdiagnosed or undiagnosed. Currently, only 5 percent of rare diseases have treatments, NORD points out.

A majority of states are not measuring up on legislative solutions that reduce the burden of rare diseases affecting 30 million Americans, according to a new report released by the the NORD Rare Action Network® (NORD RAN). The 2018 “State Report Card” indicates that progress in several areas of health policy is slow, according to the report.

The third annual edition of the State Report Card rates states on the strength of policies including coverage of medical foods and newborn screening, prescription drug cost-sharing limits, policies supporting biosimilar prescriber communications, protections against step therapy protocols, and the establishment of rare disease advisory councils. New this year, according to NORD, the report also looks at Medicaid Waivers (including proposed work requirements, lifetime limits, drug formulary restrictions, and other proposed changes to benefits), storage and research consent for dried blood spot samples used in newborn screening, and state Right-to-Try laws.

Connecticut earned grades all across the scale - three A's and four B's, as well as three C's and two F's.   Overall, the report found nationally that:

• Fifteen states earned an F for failing to mandate adequate coverage of medical foods
• Thirty-six states earned an F for failing to enact prescription drug cost-sharing limits, despite third-party analysis showing these cause little to no impact on overall plan premiums for all beneficiaries
• Newborn screening has saved tens of thousands of lives, yet more than half of states fail to meet federal recommendations
• Fifteen states (including Connecticut) earned an A or B for protecting patients against step therapy, a procedure by which insurers (public or private) interfere with and delay appropriate care for patients that ultimately increases costs

“The intent with this report is to share valuable information that will enable advocates to affect change in their state,” said NORD Director of State Policy, Tim Boyd. “Our goal is to provide actionable steps for states that will improve people’s lives, so the report presents findings as well as tools for individuals to act on.”

Under the Affordable Care Act, many people with rare diseases can now access affordable health insurance. However, NORD officials point out, some insurance policies place orphan therapies on the so-called “specialty-tier” of a drug formulary. For drugs placed on this tier, enrollees often must meet cost sharing requirements that can be as much as 50% of the actual cost of the medication.

Later this month, NORD marks its 35^th anniversary with a Summit in Washington, DC.  A 501(c)(3) organization, NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.  NORD, along with its more than 280 patient organization members,  is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

Manufacturing Day Highlights Changes for Next Generation of Workers

There are 25 Manufacturing Day events planned in Connecticut in 2018, with most taking place this week and many open to the public.  Manufacturers across the country and across Connecticut use MFG Day (October 5 this year) as “an opportunity to inspire and recruit the next generation of manufacturers,” according to organizers, with hundreds of students across the state expected to participate.  Nationwide, more than 2500 events are planned.  Manufacturing Day is observed annually on the first Friday in October.

• Manufacturing is responsible for $42 billion in economic activity annually, officials underscore.  Among the participants: Associated Spring in Bristol will offer a detailed tour of their plant on Friday midday, to include presentations on careers in manufacturing, to include apprenticeship programs, engineering, and the role of machinists.  Associated Spring is business of Barnes Group Inc.
• Chester-based CHAPCO, the Small Business Administration’s Connecticut and New England Manufacturer of the Year, will also be offering tours to the public on Thursday which will showcase the company’ s equipment, employees and overall capabilities.  The company has been providing metal fabrication, assembly, product development and engineering services since 1964.
• Marion Manufacturing Company, located in Cheshire, will offer visitors a “first-hand look at manufacturing in today’s high tech world.”  Marion Manufacturing, which began operations in 1946, was started as a progressive die stamper and remains that today, enjoying a worldwide customer base, company officials indicated.

State officials highlight a series of statistics to underscore manufacturing's importance to the state economy:

• 4,500 businesses and more than 160,000 employees
• Every dollar spent on manufacturing adds $1.35 in total economic activity
• Manufacturing generates 11% of Connecticut’s Gross State Product
• Connecticut manufacturers export $15B+ each year, representing 96% of the state’s exports.

Among the other businesses that will be providing the public with a glimpse of modern-day manufacturing are Dymotek in Ellington (October 5 Interactive tour), HoloKrome in Wallingford (October 5 facilities tour), Click Bond in Watertown (October 18 Open House), Mastercam in Tolland (October 5 tour to include explanations of environmental practices), and Fisher Unitech in East Hartford (October 30).

Organizers point out that Manufacturing Day - which began in 2012 - addresses common misperceptions about manufacturing by giving manufacturers an opportunity to open their doors and show, in a coordinated effort, what manufacturing is — and what it isn’t. By working together during and after MFG DAY, manufacturers will begin to address the skilled labor shortage they face, connect with future generations, take charge of the public image of manufacturing, and ensure the ongoing prosperity of the whole industry.

Manufacturing Day is produced by the National Association of Manufacturers (NAM) and the Manufacturing Institute. The NAM is the nation’s largest industrial trade association, representing small and large manufacturers in every industrial sector and in all 50 states.

The full list of participating manufacturers in Connecticut can be seen here.

https://youtu.be/jcUsrdTbZU0

Suicide Numbers Increasing; Efforts Intensify to Respond, Prevent

The Centers for Disease Control and Prevention (CDC) released a report this year that suicide rates nationally jumped by 25 percent since 1999, a finding that “shocked” even experts who believed the rate had been flat. Each year, more than 41,000 individuals die by suicide, leaving behind their friends and family members to navigate the tragedy of loss, according to the National Alliance on Mental Illness. Connecticut's rate, 9.7 deaths per 100,000, rose 20 percent during that time, and 49 states saw an increase, according to the CDC. Connecticut’s suicide rate, is ranked number 46 in the country.

Suicide is the 10th leading cause of death in the U.S. with one occurring on average every 13.3 minutes. September is National Suicide Prevention Month.

For every suicide, there are 30 people who made the attempt, Dr. James F. O'Dea, vice president of the Behavior Health Network of Hartford Healthcare, recently told the Meriden Record-Journal.  The U.S. Health Resources & Services Administration reports that “approximately 45% of suicide victims had contact with primary care providers within 1 month of suicide.”

“Connecticut suicide rates may have not have increased as much in comparison to other states, but isn’t the real question, ‘Why is it increasing at all?’” Luis Perez, president and CEO of Mental Health Connecticut, told The Hartford Courant earlier this year.

“It’s been well-researched that most people who die by suicide do so because they want the pain to stop — and they don’t see any other way,” Perez said. “Prevention is critical. Knowing the safe and right way to talk to someone who may have thoughts of suicide and letting people know they are not alone, that millions of people struggle with suicide ideation is key.”

According to the state Department of Public Health, approximately 31 percent of victims had a history of treatment for mental illness and 42 percent had previously attempted or thought about suicide or disclosed their intent to commit suicide. The CDC offers 5 steps to help someone at risk: 1. Ask. 2. Keep them safe. 3. Be there. 4. Help them connect. 5. Follow up.

The U.S. government’s anti-bullying website, stopbullying.com, points out that “many issues contribute to suicide risk, including depression, problems at home, and trauma history. Additionally, specific groups have an increased risk of suicide, including American Indian and Alaskan Native, Asian American, lesbian, gay, bisexual, and transgender youth.”  The site indicates that “this risk can be increased further when these kids are not supported by parents, peers, and schools. Bullying can make an unsupportive situation worse.”

Matt Riley, Chief Operating Officer of the Connecticut-based Jordan Porco Foundation, recently told WTNH-TV that suicide is the second leading cause of death for Americans ages 15 to 24. One in ten college students and one in five high school students consider suicide. Young people considering suicide are most likely to talk to peers, so the Jordan Porco Foundation focuses on peer-to-peer outreach and awareness, with a series of successful program initiatives on college campuses in Connecticut and across the country.

In recent years, a new student-driven primary prevention program was piloted to help high school students develop positive coping skills and enhance protective factors in preparation for life beyond high school. Schools and organizations participating included Manchester High School, Immaculate High School in Danbury, Enfield Public Schools, Capital Preparatory High School in Hartford, Institute of Living in Hartford, Jewish Family Services in West Hartford, Wilton High School, Boys & Girls Club of Bristol, and Guilford Youth & Family Services.

Numerous organizations across Connecticut offer Mental Health First Aid, an 8-hour training to teach participants how to help someone who is developing a mental health problem or experiencing a mental health crisis. The evidence behind the program demonstrates that it helps trainees identify, understand and respond to signs of mental illnesses and substance use disorders.  The course is often offered to participants free of charge.

https://youtu.be/TT_HLG5FkKA

https://youtu.be/jl87bmuCTdM

Read This: Finalists Announced for 2018 CT Book Awards

Connecticut Center for the Book, a Connecticut Humanities program, has announced the finalists for its 2018 Connecticut Book Awards. The awards recognize and honor authors and illustrators who have created the best books in or about our state in the past year.  A total of 140 books were submitted this year, up 28 percent over last year, as the returning awards program gains momentum. The annual awards returned last year after a multi-year hiatus, to solid reviews. Between three and five finalists have been selected in each of five categories: Fiction, Nonfiction, Poetry, Young Readers – Young Adult, and Young Readers – Juvenile. Five distinguished judges per category read each entry and reviewed works using rigorous criteria.

Winners will be announced at the 2018 Connecticut Book Awards ceremony on Sun., Oct. 14, from 2:00-3:00 p.m. at Staples High School in Westport.  Okey Ndibe, the 2017 Connecticut Book Award winner for nonfiction, will deliver the keynote speech. He has taught at Brown University, Connecticut College, Simon’s Rock College, Trinity College, and the University of Lagos (as a Fulbright scholar). He is the author of two novels, Arrows of Rain and Foreign Gods, Inc., and a memoir, Never Look An American In the Eye, for which he won the 2017 Connecticut Book Award for nonfiction.

A reception and book signing with this year’s winners, finalists, and Mr. Ndibe will immediately follow from 3:00-4:00; all finalists’ and winners’ books will be available for purchase.  Connecticut Humanities (CTH) is the state affiliate of the National Endowment for the Humanities and administers the Connecticut Center for the Book.  Established by Congress in 1977 to “stimulate public interest in books and reading,” the Center for the Book in the Library of Congress is a national force for reading and literacy promotion.

The finalists:

Fiction

• Abby Fabiaschi, of West Hartford, Conn., “I Liked My Life”
• Jane Green, of Westport, Conn., “The Sunshine Sisters”
• Georgia Hunter, of Rowayton, Conn., “We Were the Lucky Ones”
• Rene Denfeld, of Portland, Oregon, “The Child Finder”
• Courtney Maum, of Norfolk, Conn., “Touch”

Nonfiction

• Virginia DeJohn Anderson, of Boulder, Colo., “The Martyr and the Traitor – Nathan Hale, Moses Dunbar, and the American Revolution”
• Duo Dickinson, of Madison, Conn., and Steve Culpepper, of New Haven, Conn., “A Home Called New England”
• David Hays, of Chester, Conn., “Setting the Stage: What We Do, How We Do It, and Why”
• James C. Scott, of Durham, Conn., “Against the Grain: A Deep History of the Earliest States”

Poetry

• Gina Athena Ulysse, of Middletown, Conn., “Because When God is too Busy”
• Jose B. Gonzalez, of Quaker Hill, Conn., “When Love was Reels”
• John Surowiecki, of Amston, Conn., “Martha Playing Wiffle Ball in Her Wedding Dress”
• Charles Rafferty, of Sandy Hook, Conn., “The Smoke of Horses”

Young Readers – Young Adult

• Jake Burt, of Hamden, Conn., “Greetings from Witness Protection!”
• Karen Romano Young, of Bethel, Conn., “Whale Quest”
• Sarah Albee, of Watertown, Conn., “Poison”

Young Readers – Juvenile (includes authors and illustrators)

• Gigi Priebe, of New Canaan, Conn., “The Adventures of Henry Whiskers”
• Lauren Baratz-Logsted, of Danbury, Conn., “I Love You, Michael Collins”
• Susan Hood, of Southport, Conn., “Double Take! A New Look at Opposites”
• Deborah Freedman, of Hamden, Conn., “This House, Once”
• Andrea Wisnewski, of Storrs, Conn., “Trio, The Tale of a Three-legged Cat”

The awards ceremony and reception are open to the public, and conclude Saugatuck StoryFest, a three-day literary festival and writers’ conference. Tickets purchased online before Sept. 15 are $20; then $25 through Oct. 11. Tickets will also be available at the door for $30.

Fairfield University Seen as "Transformative" Institution, Analysis Shows

When Money magazine ranked the 727 “Best Colleges For Your Money,” 2018 edition, Fairfield University ranked number 160.  But when the focus narrowed to the nation’s “most transformative” schools, Fairfield rose into the top 10, landing at number seven. Fairfield’s ranking as among the most transformative institutions, which is “when a college helps students do far better than would be expected from their academic and economic backgrounds,” recognizes the institution’s commitment to holistic formation and places it as the highest ranking Jesuit university in that category, according to school officials.

In the “most transformative” category, the list is led by Massachusetts College of Pharmacy and Health Sciences (MCPHS) in Boston, Babson College in Wellesley, MA, Bentley University in Waltham, MA, San Jose State University, Mount Saint Mary’s University in Los Angeles, and Manhattan College. 

Money magazine indicates that Fairfield “stands out for its comparatively high graduation rate. The school admits students of all faiths, but the curriculum does require some religious studies for all of the roughly 4,000 undergrads.”

“Of the school's 44 majors, the most popular courses of study include accounting, business, marketing, and the social sciences. The university also places an emphasis on community service and social justice.”

According to the magazine, full price tuition is $65,900; the estimated price with the average grant is $41,400. More than 8 in 10 students with need receive grants.  Early career earnings are estimated at $57,100, and average student debt at graduation is $27,000.

Money’s annual “Best Colleges for Your Money” ranking places Fairfield among the Top 100 private universities in the country.

In the magazine’s overall rankings, Yale University was #15, University of Connecticut ranked #50, Wesleyan University was #111, Connecticut College placed at #245 and Quinnipiac University was #341 on the list of Best Colleges for Your Money.

CT's Blockchain Working Group Strives to Drive State Policy in Emerging Field

It was established in the final hours of the 2018 legislative session, and held its first meeting the following month, back in June.  Special Act 18-8 created Connecticut’s Blockchain Working Group, with little fanfare and less notice.  The objective:  make recommendations to the incoming 2019 legislature that will “help promote innovation and economic growth by reducing barriers to and expediting the expansion of the state's blockchain industry.” While the Task Force was getting started, another blockchain initiative was grabbing headlines.  Seven Stars Cloud announced in early  July that it was planning to purchase the former University of Connecticut campus in West Hartford to develop a $283 million financial technology hub that would attract more than 50 companies, along with a research institute and training center, with blockchain technology being the centerpiece.

Local zoning approvals are pending, and the state has agreed to loan the company $10 million for renovations to the 58-acre property, and to forgive the loan if the company employs 330 people there over five years. In late August, the company changed its name to Ideanomics.

The legislation calls for the leaders of the legislature’s Commerce Committee – Republicans and Democrats – to  jointly appoint and convene a working group to develop a master plan for fostering the expansion of the blockchain industry in the state and recommend policies and state investments to make Connecticut a leader in blockchain technology. It calls for the “master plan” to:

• Identify the economic growth and development opportunities presented by blockchain technology;
• assess the existing blockchain industry in the state;
• review workforce needs and academic programs required to build blockchain expertise across all relevant industries; and
• make legislative recommendations that will help promote innovation and economic growth by reducing barriers to and expediting the expansion of the state's blockchain industry.

A final report and recommendations is due on January 1, 2019.

The Working Group, which met initially on June 28 in Stamford, is chaired by Nick Kammerman of Westport-based Chateaux.  Members include David Noble (UConn Business School), Don Tirea (Checkmate Inc.), Jamil Hasan (Blockchain Consultant), Kevin Hart (Green Check Verified), Emily Goodman Binick (Blockchain Consultant), Margaret Feeney (Nat West Markets), Bryant Eisenbach (DappDevs), Spencer Curry (Trifecta Ecosystems), Philip Bradford (UConn Engineering School) and Stephen Ehrlich (Crypto Trading Technologies).  Legislators participating in the Working Group are Senators Joan Hartley and L. Scott Frantz and Representatives Caroline Simmons and Dave Yaccarino.  State Economic and Community Development Commissioner Catherine Smith serves as an ex-officio member.

Among the tax treatments the Working Group discussed preliminarily at the meeting, according to the  official Minutes,  were creating “tax incentives for companies that create blockchain products or use them who are currently in the state or coming to the state,” “changing laws to give blockchain industries access to banks in order to pay taxes,” and “figuring out how the state of Connecticut can implement a system to help blockchain/cryptocurrency companies and individuals pay taxes and fees.”

Testifying in support of the legislature this spring, Spencer Curry, CEO and co-founder of Trifecta Ecosystems, explained that “blockchain stands to revolutionize global industries by creating new revenue models and driving costs down on existing revenue models, automating processes with smart contracts, increasing traceability/visibility, and hardening security to malicious attackers.”

Supriyo B. Chatterjee of West Hartford noted that “blockchain has arrived in the Connecticut industries andwith it brings high-vbalue jobs that will contribute significantly to the Connecticut economy.” He pointed out that blockchain will have a “profound effect on the health sciences industry,” as well as the insurance industry and STEM jobs, and will “fundamentally change the distribution of goods and services worldwide.”

Curry went on to suggest that “supporting this technology will benefit Connecticut’s workforce through an infusion of excellent talent from around the world.  If the State does not embrace blockchain technology, it … will only hasten the corporate flight from our state.”  He said that “if the State chooses to empower companies exploring blockchain technologies, then a new wave of prosperity and success awaits these tried and true Connecticut industries,” such as insurance, advanced manufacturing, healthcare, financial, agriculture and military supply chain.

Commissioner Smith, one of the seven people to submit testimony on the bill, told the Commerce Committee at the March public hearing that the department lacks “the in-house expertise to conduct an informed analysis” of “all facets of blockchain technology.” The original version of the bill included $200,000 allocation for the Department of Economic and Community Development to conduct the study.  The Senate amendment eliminated the funding allocation.

Don Tirea of DappDevs indicated that a blockchain initiative that “incentivizes research and development for enterprises and startups, coupled with a highly skilled tech talent pipeline is a recipe for economic revitalization across Connecticut’s historic industries.  He added that embracing blockchain technology would create a “shift in our nation’s perspective of Connecticut’s ability to innovate”

Co-sponsors of the original legislation (Senate Bill 443), which was later amended in the Senate, included Senators Michael McLachlan, Heather Somers, Scott Frantz, and George Logan.  House co-sponsors included Caroline Simons, Michael Winkler, Livvy Floren, Laura Devlin and Linda Orange.

DataHaven to Launch Innovation Awards to Recognize Data-based Initiatives in CT

In conjunction with its 25th anniversary celebration this year, New Haven-based DataHaven has announced plan to launch the DataHaven Innovation Awards, which will be open to nominees from throughout the state. Winners will be selected in a number of education and community impact categories. Nomination will be accepted through October 1, and the award recipients will be announced at DataHaven’s 25th Anniversary Celebration on November 19, 2018. DataHaven is a non-profit organization with a history of public service to Greater New Haven and Connecticut. The organization’s mission is to improve quality of life by collecting, sharing, and interpreting public data for effective decision making.

“We are proud to highlight the creativity and ingenuity of those who employ data to make Connecticut a better place,” explained DataHaven Executive Director Mark Abraham. The awards will recognize organizations, groups and individuals who have demonstrated the ability to use data to improve the well-being of Connecticut communities.

The inaugural Data in Education Awards will recognize the outstanding use of data for projects developed within a classroom or educational setting. Nominations will be accepted in two categories, University and Graduate Level and K-12 Level.  Nominees can include teachers, students, school-based organizations, and non-profits working with youth.

The Data for Community Impact Awards will recognize the outstanding use of data to make a positive difference in one or more Connecticut communities. Nominations will be accepted in two categories: Large Organization, with more than 20 employees, and Small Organization, with less than 20 employees.  Nominees can include nonprofits, for-profits, funders, unincorporated groups, and municipal/state agencies.

Liberty Bank Foundation is underwriting the DataHaven Innovation Awards.

DataHaven maintains extensive economic, social, and health data, including information collected through the DataHaven Community Wellbeing Surveys in 2012 and 2015. DataHaven is a formal partner of the National Neighborhood Indicators Partnership of the Urban Institute in Washington, DC.

“We believe that data is a powerful force, uniting our state and helping make life better in Connecticut communities,” says Abraham. “Our statewide survey provides neighborhood-level data in key areas such as health, education, civic engagement and economic opportunity, so that programs and resources can be deployed to change lives for the better. Our goal is still to make life better for our neighbors.”

Presenting sponsors for the organization’s 25^th anniversary year are the City of New Haven, Yale University, Yale New Haven Health and The Community Foundation for Greater New Haven.  Nomination forms for the DataHaven Innovation Awards can be found at http://www.ctdatahaven.org/anniversary and are due by October 1, 2018.

Survey: Three CT Metro Areas Among Top 50 Most Educated in U.S.

In an analysis ranking America’s metropolitan areas to identify the most educated in the nation, one Connecticut region – the Bridgeport-Stamford-Norwalk area – was the 10^th best in the nation, and two others earned spots in the top 50.   Hartford-West Hartford-East Hartford was ranked number 26 and New Haven-Milford placed at number 44. The Bridgeport-Stamford-Norwalk metropolitan area also ranked fifth in the nation in the percentage of bachelor’s degree holders and the percentages of graduate or professional degree holders.  The regions with higher percentages in both categories are Ann Arbor, Washington D.C., and San Francisco, joined by San Jose for bachelor’s degrees and Durham-Chapel Hill, NC for graduate or professional degrees.

Topping the overall list of “Most Educated Cities,” in an analysis from the financial services website WalletHub, were Ann Arbor, Washington DC, San Jose, Durham-Chapel Hill, San Francisco-Oakland, Madison, Boston-Cambridge-Newton, Austin, and Seattle-Tacoma.  The analysis was developed by the financial services website WalletHub.

On a substantially less positive note, the Bridgeport-Stamford-Norwalk metropolitan area had the largest racial education gap in the nation, of 140 metropolitan regions included in the analysis.

Data used to create this ranking were collected from the U.S. Census Bureau, GreatSchools.org, Education Cities.org, Yelp and WalletHub research.  A total of 11 relevant metrics were used, in the areas of Educational Attainment, Quality of Education and Attainment Gap.

In another recent survey, using different methodology, West Hartford was declared the "most educated city" in Connecticut by the financial insurance website Insurify.  The website noted that the  U.S. Census Bureau recently reported that for the first time in history, over one-third of American adults now have at least a Bachelor’s degree and high school completion rates are at an all-time peak.

To determine the most educated community in each U.S. state, Insurify analyzed over 1.4 million completed auto insurance applications in which individuals were asked about their city of residence and highest level of education. Using a proprietary scoring algorithm, Insurify's analysts calculated a score for each applicant based on educational achievement, and, for current high school students, likelihood of advancement to college based on reported GPA. The resulting data set was analyzed to determine the average scores for each city across all age ranges, and a composite score was created for each city.

West Hartford led the list in Connecticut.  In Massachusetts it was Cambridge; in Rhode Island, Providence led the way.

Legal Challenge Seeks to End Prison Gerrymandering in CT

In 2010, New York State enacted legislation to ensure that incarcerated persons are be counted as residents of their home communities when state and local legislative districts are redrawn in New York, in an initiative designed to end what has come to be called “prison gerrymandering.” Connecticut has repeatedly considered legislation during the past decade – in 2011, 2013, 2015 and 2016 - that would make the same policy change, but that legislation has failed to pass.  A 2013 report by the Prison Policy initiative and Common Cause found that almost half of the state's prison population comes from the state's five largest cities, but almost two-thirds of the state’s prison cells are located in just five small towns - Cheshire, East Lyme, Enfield, Somers, and Suffield.

Because prisons are disproportionately built in rural areas but most incarcerated people call urban areas home, counting prisoners where they are incarcerated rather than in their home municipality results in a “systematic transfer of population and political clout” from urban to rural areas, according to the Prison Policy Initiative.

That shift of political influence has ramification across the electoral system, and was the impetus for a lawsuit filed this summer against the state of Connecticut by the NAACP to force an end to the practice.  It is the first of its kind, and being widely watched.

The NAACP points out that Connecticut, like many states, disenfranchises prisoners and has concentrated its prisons primarily in rural areas. The effect is that white, rural voters in the districts where prisons are located have their electoral power unconstitutionally inflated, at the expense of voters of color in other, over-crowded districts.

The plaintiffs seek to compel the State of Connecticut to adopt a new redistricting map that counts incarcerated individuals in their home state legislative districts rather than in the districts where they are being incarcerated, thereby safeguarding the Fourteenth Amendment principle of “one person, one vote.”

Although a number of states continue to engage in this practice, the NAACP explains, Connecticut has some of the worst discrepancies in population numbers between its prison districts and most populated districts.

According to the complaint filed in U.S. District Court, when prisoners are reallocated to their home districts, the population of the 59^th House District, which includes Enfield and East Windsor, where three state prisons are located, has an overall population that is more than 15% smaller than the most populated district in the state. The effect is that the vote of a person in that prison district counts for 15% more than each vote of a person in the largest district.

“This is about making sure everyone gets an equal voice,” said Germano Kimbro, a formerly incarcerated individual and plaintiff in the case. A resident of the 97^th House District, located in New Haven, one of the most overcrowded state legislative districts in Connecticut, Kimbro argues “My vote shouldn’t count less than someone else’s just because they live near a state prison.”

The NAACP, together with the NAACP Connecticut State Conference and individual NAACP members who live in five of the most overcrowded Connecticut state legislative districts, filed the suit.  The plaintiffs in the lawsuit are represented by the Rule of Law Clinic at Yale Law School and the NAACP.

“Each person’s vote is to be equal to that of their fellow citizens,” explains Alden Pinkham, a student in Yale Law School’s Rule of Law Clinic. “Using prisoners to inflate the population of the districts where prisons are located violates this principle.”

Seven states (Colorado, Mississippi, New Jersey, Virginia, Maryland, Michigan, and New York) encourage or even require local governments to exclude prison populations during redistricting.  The next legal filings in the case are due just after Labor Day.  A conclusion is not anticipated prior to the 2018 November elections, but with an eye toward 2020.

CT Journalists to Focus on First Amendment, Press Freedoms

Erica Moser was told, “newspapers are a dying industry,” when she began classes at Northeastern University in Boston in 2011. Since June a higher education and business reporter for the Day of New London, Moser will be back on campus in Boston next month as one of four Journalism Fellows from Connecticut selected to participate in the New England First Amendment Institute, organized by the New England First Amendment Coalition.

This three-day institute is open each year to 25 New England journalists and “provides the support and training necessary to become more accomplished investigative reporters, well versed in the freedom of information laws that govern today’s difficult reporting landscape,” according to NEFAC officials.

NEFAC provides the institute — from Sept. 16-18 this year at Northeastern University — at no cost to those who attend.  Joining Moser and representing Connecticut will be Ben Lambert of the New Haven Register, Barry Lytton of the Stamford Advocate and Skyler Frazer of the New Britain Herald.  It includes workshops and presentations featuring some of the country’s elite investigative reporters, editors and media attorneys.

Ben Lambert, a reporter for the New Haven Register, worked previously for the Torrington Register-Citizen, Mass Live News and the Valley Advocate.  Barry Lytton, a Stamford Advocate reporter since 2016, previously covered New Milford and surrounding towns for the News-Times in Danbury. Skyler Frazer is a government and education reporter for the New Britain Herald.  A Wethersfield native, he joined the paper in 2016.

NEFAC is the region's leading advocate for the First Amendment and the public's right to know. Formed in 2006, the coalition is a broad-based organization of people who believe in the power of an informed democratic society.  Among the 2018 Fellows are four reporters from Maine, eight from Massachusetts, and three from New Hampshire, Rhode Island and Vermont.

Stephanie McCrummen of The Washington Post, who won a Pulitzer Prize this year for investigative reporting, will deliver the keynote address. Joining McCrummen as featured speakers are Terence Smith, a contributing columnist for the Capital Gazette in Annapolis, Md., and David Cuillier, an associate professor at the University of Arizona School of Journalism.

Other speakers include Jennifer Bjorhus of the Star Tribune in Minneapolis, Minn.; Michael Kilian of the Burlington Free Press; Cheryl Thompson, a contributing investigative reporter for The Washington Post; Cindy Galli of ABC News; Todd Wallack of The Boston Globe; Mike Beaudet of WCVB-Boston and Northeastern University; and Tim White of WPRI-Providence.

In recent years, attendees from Connecticut have included Susan Haigh of the Associated Press, Stephen Busemeyer, Suzanne Carlson and Mikaela Porter of The Harrtford Courant, Jill Konopka of NBC Connecticut, Kaitlyn Krasselt of the Norwalk Hour, Patrick Skahill of WNPR, Martha Shanahan, Lindsay Boyle and Julia Bergman of the Day, and Estaban Hernandez and Ann Misaro of the New Haven Register.