Flags Fly Across Connecticut During Donate Life Month; Events Held Statewide

Nearly 100 Connecticut municipalities, hospitals and organizations are promoting organ and tissue donation awareness by flying flags that read “Donation Saves Lives” during April, the 10th annual National Donate Life Month.

Connecticut’s flag flying campaign is part of a national initiative, Flags Across America, to honor and celebrate the hundreds of thousands of donors and recipients whose lives have been affected by organ and tissue donation.  With more than 116,000 people in America waiting for a transplant, and 1,300 in Connecticut alone, the need for donation has never been greater.  Across the nation, every 12 minutes a new person is added to the wait list, and every day 18 people die waiting for an organ or tissue transplant.

The goal this month is to increase the Donor Registry, which will inevitably impact the number of transplants that give new life and hope to people suffering from fatal illness or life threatening injury.  The celebration commemorates those who have received the gift of organ and tissue donation, raises awareness for those that still wait and honors those that have given the gift of life as donors.

Connecticut’s participating communities are partnering with Donate Life Connecticut and LifeChoice Donor Services to increase the donor registry and help save lives in the state’s communities.  Donate Life Connecticut is a volunteer driven statewide non-profit dedicated to raising awareness.  To register as an organ and tissue donor visit www.DonateLifeNewEngland.org or register when renewing your state driver's license at the Department of Motor Vehicles.

“I’ll Save You, Will You Save Me?” is the theme that underlines a new campaign being conducted by the state Department of Motor Vehicles. The effort aims to increase awareness registering as a donor with a simple change on a driver's license, state ID card, or by going online.  It is as easy as either making that choice at the time of renewing or obtaining a license, or going to www.donatelifenewengland.org to sign up to join  the registry of donors. There are currently over 1.1 million registered donors in the state.

Lt. Governor Nancy Wyman marked the recently formed collaboration of the Department of Motor Vehicles, Donate Life Connecticut, Hartford Hospital, LifeChoice Donor Services, New England Organ Bank, Saint Francis Hospital and Medical Center and Yale New-Haven Hospital. The hospitals, DMV, Organ Procurement Organizations and local Donate Life affiliate have teamed up for a special outreach program of activities and television public service commercials.

“Becoming an organ or tissue donor is literally a decision to save the lives of others.  Those ‘others’ may be family members, friends, neighbors or co-workers.  One organ donor can touch more than 50 lives,” said Wyman.  The initiative will run through late October with the goal of reaching 20,000 new donors through the http://www.donatelifenewengland.org website and DMV.

The television campaign is funded through contributions from the three hospitals and an allocation in the current budget from the state legislature to promote organ and tissue donor awareness. Public service announcements will also support the campaign.  The ads aim to encourage people to become donors and to consider donation as a community responsibility. They also aim to reduce common fears about donating by showing how donations help save people.

In New London on Friday, April 26, Lawrence & Memorial Hospital is bring people together at Connecticut College’s F.W. Olin Science Center at 6 p.m. to celebrate Donate Life Month by lighting 200+ luminaries at a donor family gathering prior to a free movie screening of Power of Two- A story of twin sisters, two cultures, and two new chances at life. This inspiring, award-winning movie documents the double lung transplants received by half-Japanese twins Ana and Isa Stenzel, born with Cystic Fibrosis, a fatal genetic disease that impacts the lungs and pancreas. They have emerged as authors, athletes and global advocates for organ donation.   For details and reservations, contact proma@lmhosp.org or 860-444-3722.

Donate Life New England is a joint project of three federally designated organ procurement organizations that serve New England – New England Organ Bank, LifeChoice Donor Services, The Center for Donation and Transplant and the Connecticut Eye Bank. LifeChoice Donor Services is the federally designated, non-profit organ procurement organization for six counties in Connecticut and three counties in Western Massachusetts with a combined population of 2.1 million people.

LifeChoice serves twenty-three acute care hospitals for organ and tissue donation and two organ transplant hospitals, Hartford Hospital in Hartford, CT and Baystate Medical Center in Springfield, MA. LifeChoice Donor Services is a member in good standing of the United Network of Organ Sharing and the Association of Organ Procurement Organizations.

Donate Life Connecticut is a volunteer driven Connecticut non-profit dedicated to increasing the number of registered organ and tissue donors through education and public outreach.  The organization’s coalition of donor families, transplant recipients, living donors, supporters and healthcare professionals believe that working together with a common voice is the best way to reach the goal of increasing the Donor Registry, which will inevitably impact the number of transplants that give new life and hope to people suffering from fatal illness or life threatening injury.

National BRAIN Research Initiative Good News for Connecticut

The BRAIN Initiative — short for Brain Research through Advancing Innovative Neurotechnologies — announced this week by President Obama, calls for historic investments in research and development to fuel innovation, job creation, and economic growth.  In Connecticut, where scientific research – from stem cells to bioscience – has been advocated and advanced by government and a roster of companies home-grown and imported, the proposal to push yet another scientific envelope should be good news. The Initiative “aims to bring together nanoscience, engineering neurology,” said Dr. Francis Collins, Director of the National Institutes of Health, who described the initiative as “bold and audacious.”   It is an effort to revolutionize understanding of the human mind and uncover new ways to treat, prevent, and cure brain disorders like Alzheimer’s, schizophrenia, autism, epilepsy, and traumatic brain injury.

The announcement came on World Autism Day, created to bring attention to the group of developmental disabilities known as autism spectrum disorders (ASD).   In Connecticut, Autism Speaks, part of the national organization, offers connections to 120 resources to support and assist families.  Recent stats indicate that autism effects 1 in 88 children and 1 in 54 boys .

The Alzheimer's Association, the world's leading voluntary health organization in Alzheimer's care, support and research said it “looks forward to working with the administration on this ambitious new project.”   The Connecticut chapter holds its annual education day on April 16 in Berlin.  More than 5 million Americans are living with Alzheimer's, including 200,000 younger than age 65.

The President highlighted the BRAIN Initiative as one of the Administration’s “Grand Challenges” – ambitious but achievable goals that require advances in science and technology to accomplish. The President called on companies, research universities, foundations, and philanthropies to help create the jobs and industries of the future while improving lives.  The BRAIN Initiative is launching with approximately $100 million in funding for research supported by the National Institutes of Health (NIH), the Defense Advanced Research Projects Agency (DARPA), and the National Science Foundation (NSF).

In January, Governor Malloy proposed the Bioscience Innovation Act which, over ten years, would establish a $200 million fund here to strengthen Connecticut’s bioscience sector, to be administered by Connecticut Innovations, the state quasi-public economic development entity.  Private organizations also promote and advance research in the state, as well as responding to individual dealing with brain-related diseases or injuries.

The Brain Injury Alliance of Connecticut (BIAC) sponsors approximately 30 support groups throughout Connecticut. All provide information, support, and encouragement to survivors and their loved ones.  The organization has events planned in May (bike-a-thon) and June. As a partner in prevention, BIAC works with individuals, organizations, schools and government to educate people in Connecticut about the causes and realities of brain injury. As a resource in recovery, BIAC is the only non-profit organization in the state dedicated to providing brain injury survivors and their families.

Also among the numerous organizations in Connecticut with a particular interest in brain-related research is The Connecticut Brain Tumor Alliance, a non-profit organization dedicated to raising awareness of the disease, providing hope and support for those living with brain tumors in Connecticut and raising money “to support and advocate the cutting-edge research we all know someday will find a cure.”  The organization has major fundraising events planned for May (at CitySteam in Hartford) and July (at the New Britain Rock Cats).  The organization is led by “nine individuals whose lives were changed forever by the five words, ‘you have a brain tumor,’” according to the Alliance website.

Hydrocephalus is an abnormal accumulation of cerebrospinal fluid (CSF) within cavities of the brain called ventricles.  The Hydrocephalus Association's mission, including a chapter in Connecticut, is to eliminate the challenges of hydrocephalus by stimulating innovative research and providing support, education and advocacy for individuals, families and professionals dealing with hydrocephalus. More than one million Americans live with the challenges of hydrocephalus every day. Anyone, at any time, may be diagnosed with hydrocephalus.  The organization will hold a fundraising walk in Middlebury in September.

The Epilepsy Foundation of Connecticut is dedicated to improving the lives of people with epilepsy and their families. They are Connecticut's only affiliate of the national Epilepsy Foundation. Approximately 60,000 people in Connecticut have epilepsy, and 1 in 10 people will experience a seizure at some point in their lives, the organization emphasizes.

The new national BRAIN Initiative promises to accelerate the invention of new technologies that will help researchers produce real-time pictures of complex neural circuits and visualize the rapid-fire interactions of cells that occur at the speed of thought. Such cutting-edge capabilities, applied to both simple and complex systems, will open new doors to understanding how brain function is linked to human behavior and learning, and the mechanisms of brain disease, according to The White House.

Pilot Proposed to Track High School Sports Injuries; Prospects in Doubt

Even with increased attention of late on the prevalence of concussions in youth sports, the Connecticut Athletic Trainers Association (CATA) says there is no reliable sports-related injury data compiled by secondary schools across Connecticut – for concussions or other injuries. They’d like to change that, and are urging legislators to  The goal is to “make recommendations to decrease the number” of injuries, and to quantify the need for appropriate medical coverage for secondary school student-athletes.

The proposal is opposed by the state Department of Public Health (DPH), citing a lack of funding for such a pilot.  In testimony earlier this month for the legislature’s Public Health Committee, Commissioner Jewel Mullen said “DPH does not have resources to conduct a pilot program solely for the purpose of studying injury rates in school athletic programs.”

She went on to offer that “the DPH can assist in providing support to statewide injury prevention initiatives that would address systems and environmental change to prevent injuries and disabilities to Connecticut residents.”

The department’s Office of Injury Prevention (OIP) “ceased to exist” in August 2010, after 17 years, when it was unsuccessful in obtaining federal funds from the Centers for Disease Control and Prevention (CDC).  A five-year grant from CDC, which had supported operations of the OIP, expired in 2010.

The new pilot program being proposed by CATA and a coalition of statewide organizations would:

• Collect injury data from 20 schools over a 2-year period
• Identify injury rates, patterns and trends among high school sports participants in CT
• Assist with the development of evidence-based interventions to improve the health and safety of participants by lowering the number and/or severity of injuries and illnesses
• Provide evidence that may drive rule or policy change to ensure athlete safety
• Quantify the need for appropriate medical coverage for secondary school student –athletes

Thomas H. Trojian, Sports Medicine Fellowship Director at the UConn Health Center and a member of the Connecticut Concussion Task Force, described the plan as “vital to the health and safety of the children of the state of Connecticut.”  He told the committee that “due to the lack of a data collecting process, both physicians and those involved in these sports at a regulatory level cannot make fully educated decisions regarding interventions or rule changes to protect the health and safety of our student athletes in Connecticut.”

A multi-disciplinary group has begun collaborating, and supports the initiative.  Included are the Connecticut Athletic Trainer’s Association, Connecticut Interscholastic Athletic Conference, Connecticut State Medical Society, Connecticut Children’s Medical Center and University of Connecticut School of Medicine.

Nationally, there are 30 million high school students participating in organized sports, with more than 2 million sports-related injuries each year.  The Connecticut State Medical Society said the pilot program proposed in Connecticut is “the appropriate first step by putting in place the appropriate entities to study and report on incidence of injuries and concussions at the high school level.”  The organization added that “it has been estimated that up to 50% of injuries may be preventable or at least have the long-term consequences lessened if tracking and reporting occurred.”

In her testimony, Mullen noted that “unintentional injuries cause 25% of all deaths among Connecticut children 1 to 14 years of age and approximately half of all deaths among young persons between the ages of 15 to 24 year.”

Connecticut athletic trainers are licensed health care professionals who collaborate with physicians to optimize activity and participation of patients and clients.  Athletic training encompasses the prevention, assessment and intervention of emergency, acute and chronic medical conditions involving impairment, functional limitation and disabilities.

The National Athletic Trainers’ Association has formed a Youth Sports Safety Alliance, with more than 100 health care and sports organizations and parent activities involved.  Their goal:  to make America’s sports programs safer for young athletes.

The organization has developed a “Secondary School Student Athletes’ Bill of Rights,” and urges schools to adopt safety measures to protect students from injury or illness, particularly cardiac events, neurological injuries, environmentally-induced conditions and dietary/substance-induced conditions.

More Social Capital = Fewer Traffic Accidents, Research Study Finds

If you’ve never made a connection between traffic accidents and social capital, you’re probably not alone.  However, the Harvard Business Review (HBR) is reporting on research by Matthew G. Nagler of the City College of New York which found, perhaps surprisingly, that a 5% increase in the average level of agreement with the statement "most people are honest" within a U.S. state results in a decline in traffic fatalities in that state by about 11%. The “most people are honest” statement is a measure of trust in others that is an indicator of the state's level of social capital, sometimes defined as a willingness to engage in community activities. Less-conscientious people who reject civic engagement presumably drive more recklessly, HBR reported.

Nagler’s abstract for the research, to be published next month in the journal Economic Inquiry, explains that “evidence that social capital reduces traffic accidents and related death and injury, using data from a 10‐year panel of 48 U.S. states show that social capital has a statistically significant and sizable negative effect on crashes, traffic fatalities, serious traffic injuries, and pedestrian fatalities that holds up across a range of specifications.”

In case you were wondering, Nagler – an Associate Professor in the Department of Economics - did not want the research unduly impacted by snow-related accidents, so he used only data from summer months.  The research data used was from 1997 to 2006. His research paper is entitled “Does Social Capital Promote Safety on the Roads?”

The death toll in the U.S. from traffic accidents has been approximately 43,000 deaths annually, according to the report. Traffic fatalities remain a major cause of death at all ages and the leading cause for persons under the age of 44.

In the paper’s conclusion, Nagler notes that the results of his study “parallel prior findings with respect to social capital’s beneficial effects on economic growth and various health outcomes.”  In 2004, a study by three University of Connecticut researchers found that social capital is associated with decreased risk of hunger.“Households may have similarly limited financial or food resources, but households with higher levels of social capital are less likely to experience hunger,” they concluded.

Health Analysis Ranks Tolland, Middlesex, Fairfield Counties At Top of List

If you’re looking for the healthiest counties in Connecticut, look no further than Tolland and Middlesex Counties.  According to a report released by the Robert Wood Johnson Foundation and the University of Wisconsin Population Health Institute, Connecticut’s eight counties vary across a range of health categories and indices. In the report’s analysis of health outcomes, the order of ranking was Tolland, Fairfield, Middlesex, Litchfield, New London, Hartford, Windham, and New Haven.

The report – County Health Rankings & Roadmaps - also includes a ranking by Health Factors, which finds a slightly altered order:  Middlesex, Tolland, Litchfield, Fairfield, New London, Hartford, New Haven, and Windham. Factors included in the analysis are health behaviors, clinical care, social & economic factors, and physical environment.

The Rankings look at a variety of measures that affect health such as the rate of people dying before age 75, high school graduation rates, unemployment, limited access to healthy foods, air and water quality, income, and rates of smoking, obesity and teen births.

The report relies on a robust set of data and analysis that allows counties to see what it is that is making residents sick or healthy and how they compare to other counties in the same state. A dynamic, interactive website shows the rank of the health of nearly every county in the nation and illustrates “that much of what affects health occurs outside of the doctor’s office.”

It examines25 factors that influence health, including rates of childhood poverty, rates of smoking, obesity levels, teen birth rates, access to physicians and dentists, rates of high school graduation and college attendance, access to healthy foods, levels of physical inactivity, and percentages of children living in single parent households.

The data has been used to garner support among government agencies, healthcare providers, community organizations, business leaders, policymakers, and the public for local health improvement initiatives. The website’s Action Center offers access to free personalized assistance to places that need guidance on what steps to take to make their communities healthier places to live, learn, work, and play.

This year’s Rankings show significant new national trends:

• Child poverty rates have not improved since 2000, with more than one in five children living in poverty.
• Violent crime has decreased by almost 50 percent over the past two decades.
• The counties where people don’t live as long and don’t feel as well mentally or physically have the highest rates of smoking, teen births, and physical inactivity, as well as more preventable hospital stays.
• Teen birth rates are more than twice as high in the least healthy counties than in the healthiest counties.
• Access to health care remains an important factor and this year, the Rankings include residents’ access to dentists, as well as primary care doctors. Residents living in healthier counties are 1.4 times more likely to have access to a doctor and dentist than those in the least healthy counties.

The County Health Roadmap, which accompany the rankings, are designed to help bring people together from all walks of life to look at the many factors that influence health, focus on strategies that work, learn from other communities so as not to reinvent the wheel, and make changes that will have a lasting impact on health.

The Robert Wood Johnson Foundation focuses on the pressing health and health care issues facing our country. As the nation’s largest philanthropy devoted exclusively to health and health  care, the Foundation works with a diverse group of organizations and individuals to identify solutions and achieve comprehensive, measurable, and timely change.

The University of Wisconsin Population Health Institute is the focal point within the University of Wisconsin School of Medicine and Public Health for translating public health and health policy research into practice.

First-in-Nation Audio Service for Hospitalized Children Launched in Connecticut

In what may be the first program of its kind in the nation, CRIS Radio and Connecticut Children's Medical Center are working together to offer children who are patients at the hospital a new way to pass their time while receiving medical treatment. Connecticut Children's patients may now listen to CRISKids, a service that provides audio versions of articles published in nearly 20 award-winning children's magazines, through the hospital's in-house television system.  The audio alternative to printed magazines - through an in-house system streamed to each patient TV – can be tremendously comforting for young patients unable to read or turn pages of a magazine due to their condition or medical treatment.

CRIS (Connecticut Radio Information System) is a 34-year-old nonprofit based in Windsor and is Connecticut's only radio-reading service providing audio access to news and information for people who are blind or print-handicapped, including those unable to read due to physical, learning, intellectual or emotional disabilities.

CRISKids, the only extensive line-up of audio versions of children's magazines in the nation and Canada, was launched in December 2011.  More than a dozen titles are available, mostly for children aged 4 to 15, including National Geographic for Kids, Science World, Ranger Rick,  Junior Scholastic, Sports Illustrated for Kids and Scholastic News.

CRIS Board Chairman William H. Austin said that the Board “is excited to form a partnership with Connecticut Children's and thankful for the funding support received to bring this project to life.  Comcast provided technical assistance and a donation of special equipment necessary for the project. Other funders of the project include the Ellen Jeanne Goldfarb Memorial Charitable Trust, and the Ahearn Family Foundation.

"The availability of CRISKidsTM in patient rooms will allow children to enjoy educational entertainment, which is an extremely valuable offering and can be a helpful component of the healing process," said Martin J. Gavin, President and CEO of Connecticut Children's Medical Center.

The CRISKids initiative has received financial support from several foundations, including: Help for the Blind of Eastern Connecticut, Fund for Greater Hartford, The Gibney Family Foundation, and the Hartford Foundation for Public Giving.

CRIS Radio records more than 70 newspapers and magazines to provide audio access to printed material for people who are blind and print-handicapped. The audio recordings can be heard with a special CRIS radio, toll-free through the CRIS Telephone Reader, online streaming live or on-demand at the CRIS Radio website, www.crisradio.org, or with any mobile device, including tablets or smartphones.  CRIS operates with nearly 350 volunteers at its broadcast center in Windsor and four satellite studios located in Danbury, Norwich, Trumbull and West Haven.  The CRISKids program is also available for individual subscription.

Connecticut Children's Medical Center is a nationally recognized, 187-bed not-for-profit children's hospital serving as the primary teaching hospital for the Department of Pediatrics at the University of Connecticut School of Medicine. Named among the best in the nation for several of its pediatric specialties in the annual U.S. News & World Report "Best Children's Hospitals" rankings.

Connecticut to Receive National Support to Reduce Premature Births

With one in 10 babies born premature in the state, the National Governors Association (NGA) has targeted Connecticut and three other states for extra help in better developing and coordinating policies to reduce the rate of preterm births. NGA will convene in-state sessions with the selected states to facilitate this process and convene a networking conference for that group of states to share lessons learned and to further their respective planning processes. NGA has selected Kentucky, Louisiana and Michigan, along with Connecticut, to participate in a Learning Network on Improving Birth Outcomes. The goal is to assist states in developing, implementing and aligning their key policies and initiatives related to the improvement of birth outcomes, as measure by the incidence of preterm births and infant mortality.

Of the 41,000 babies born each year in Connecticut, about 4,000 are born preterm. The median gestational age for these babies is 35 weeks -- about a month earlier than the median 39 weeks for a full-term birth. These babies typically weigh 5.5 pounds compared with the full-term rate of 7.5 pounds.

The Learning Network will focus on demonstrated best practices of states that have improved birth outcomes. Participating states will learn about coordinating activities across agencies and options to accelerate the pace of improving outcomes and reducing costs.

The nation's premature birthrate is 11.7% of all live births — the lowest in a decade, according to figures from the National Center for Health Statistics. The March of Dimes has set a goal of 9.6% by 2020.  Nationwide, key signs of improvement in the report issued late last year:

• Four states (Vermont, Oregon, New Hampshire and Maine) earned an "A" for meeting the 9.6% goal; in 2010, only Vermont earned the top grade.
• Connecticut, at 10.1%, received a “B” in the report.
• 45 states, the District of Columbia and Puerto Rico posted improved preterm birthrates from 2009 to 2011, earning 16 of them better grades.
• The states with the highest preterm birthrates — Mississippi (16.9%), Louisiana (15.6%), Alabama (14.9%) — are among 48 states, along with Puerto Rico (17.5%) and the District of Columbia (13.7%) that have all formally set goals to lower their preterm rates 8% by 2014 from their 2009 rates.

Connecticut's rate of pre-term births also reflect a racial and ethnic disparity. The pre-term rates are 14 percent among black/African Americans, 12 percent among Latinos and 9.4 percent among whites, according to the state Department of Public Health.

The initiative  is part of the Alliance for Information on Maternal and Child Health Services (AIM). AIM is sponsored by the Maternal and Child Health Bureau of Health Resources and Services Administration of the United States Department of Health and Human Services.

Premature birth is associated with infant mortality as well as a greater risk of learning disabilities and lifelong hearing and visual problems. Some of the major risk factors for having a premature baby are smoking during pregnancy and having a pre-existing medical condition, such as diabetes or hypertension, officials said.

Hole in the Wall Gang Camp, Angel Ride Launch Anniversary Years

Registration has opened for this year’s Angel Ride, an all-volunteer effort that organizes annual athletic endurance events as fundraising initiatives with 100 percent of the money raised going directly to The Hole in the Wall Gang Camp's Hospital Outreach Program.  This year’s events, marking the 10^th anniversary of Angel Ride amidst the 25^th anniversary year of The Hole in the Wall Gang Camp, will be held May 25-26. Angel Ride, a 501(c)3 non-profit organization, has supported The Hole in the Wall Gang Camp's Hospital Outreach Program since 2007. Hospital Outreach® brings the hopeful, playful spirit of The Hole In The Wall Gang Camp – founded in 1988 by the late actor and philanthropist Paul Newman - to children and families in the hospital setting. By offering unique, creative and developmentally appropriate activities and interactions, the program helps to restore joy and laughter in a time often laden with fear, stress and uncertainty. Consistent with other Camp programs, it is available to hospitals and families at no cost.

This past year, 18,000 hospitalized children received a visit from "Camp".  They work collaboratively with hospital staff to enhance, augment or support existing programs focused on improving the quality of life during treatment. The Hospital Outreach Program brings the joy and fun of Camp’s summer programming to seriously ill children year-round. Yale-New Haven Hospital and the Connecticut Children’s Medical Center are among the hospitals in the Northeast that are participating in the program.

The Hole in the Wall Gang Camp recently released an inspiring song and music video to kick off its 25th anniversary as a hideout where seriously ill kids can simply be kids.  Natalie Merchant, one of America's most respected recording artists, created a new sing-a-long version of her iconic song "Wonder" and recorded it at the Camp in Ashford, Conn. this past summer with the campers. In the music video, Merchant leads the kids in song interspersed with clips of the late Paul Newman and the campers sharing what the Camp means to them.

Another newly released video highlights the connection between campers Hannah and Janis, who have formed a special bond during the past two years at The Hole in the Wall Gang Camp.  That bond has allowed them to face the challenges of mitochondrial disease together and experience “a different kind of healing.” The unforgettable story of their friendship brings the unique spirit of The Hole in the Wall Gang Camp to life in the first online “Healing Feeling” profile, which is part of a series being released during the Camp’s 25th anniversary.

"Wonder" was written by Natalie Merchant for her first solo album "Tigerlily."  The song, released as a single in 1996, reached the top 20 on the Billboard Hot 100 charts. Its lyrics contain the refrain, "They say I must be one of the wonders" and were inspired by Merchant’s own experience meeting twin sisters coping with a congenital disease. Merchant was struck by how positive the girls were as they faced significant challenges, thanks to an inner strength that she attributed to the love and support of their family and friends.

"For years, I've been told by parents of kids with special needs and medical staff and children themselves that 'Wonder' has become an anthem for sick kids. So I know the healing power of the song. I am delighted to add my voice to all the love, camaraderie and sharing that goes on at Camp.  Paul really did it so well. The Camp is a magical place."

Hole in the Wall Gang Camp, Angel Ride Launch Anniversary Years

Registration has opened for this year’s Angel Ride, an all-volunteer effort that organizes annual athletic endurance events  as fundraising initiatives with 100 percent of the money raised going directly to The Hole in the Wall Gang Camp's Hospital Outreach Program.  This year’s events - marking the 10th anniversary of Angel Ride, amidst the 25th anniversary year of the remarkable Camp - will be held May 25-26. Angel Charitable Trust, a 501 (c) 3 non-profit organization,  has supported The Hole in the Wall Gang Camp's Hospital Outreach Program since 2007.  Hospital Outreach® brings the hopeful, playful spirit of The Hole In The Wall Gang Camp – founded in 1988 by the late actor and philanthropist Paul Newman - to children and families in the hospital setting.  By offering unique, creative and developmentally appropriate activities and interactions, the program helps to restore joy and laughter in a time often laden with fear, stress and uncertainty. The Hospital Outreach Program brings the joy and fun of Camp’s summer programming to seriously ill children year-round.

This past year, 18,000 hospitalized children received a visit from "Camp". Consistent with other Camp programs, it is available to hospitals and families at no cost.  They work collaboratively with hospital staff to enhance, augment or support existing programs focused on improving the quality of life during treatment. Yale-New Haven Hospital and the Connecticut Children’s Medical Center are among the hospitals in the Northeast that are participating in the program.

The Hole in the Wall Gang Camp recently released an inspiring song and music video to kick off its 25th anniversary as a hideout where seriously ill kids can simply be kids.  Natalie Merchant, one of America's most respected recording artists, created a new sing-a-long version of her iconic song "Wonder" and recorded it at the Camp in Ashford, Conn. this past summer with the campers. In the music video, Merchant leads the kids in song interspersed with clips of the late Paul Newman and the campers sharing what the Camp means to them.

Another newly released video highlights the connection between campers Hannah and Janis, who have formed a special bond during the past two years at The Hole in the Wall Gang Camp.  That bond has allowed them to face the challenges of mitochondrial disease together and experience “a different kind of healing.” The unforgettable story of their friendship brings the unique spirit of The Hole in the Wall Gang Camp to life in the first online “Healing Feeling” profile, which is part of a series being released during the Camp’s 25th anniversary.

"Wonder" was written by Natalie Merchant for her first solo album "Tigerlily."  The song, released as a single in 1996, reached the top 20 on the Billboard Hot 100 charts. Its lyrics contain the refrain, "They say I must be one of the wonders" and were inspired by Merchant’s own experience meeting twin sisters coping with a congenital disease. Merchant was struck by how positive the girls were as they faced significant challenges, thanks to an inner strength that she attributed to the love and support of their family and friends.

"For years, I've been told by parents of kids with special needs and medical staff and children themselves that 'Wonder' has become an anthem for sick kids. So I know the healing power of the song. I am delighted to add my voice to all the love, camaraderie and sharing that goes on at Camp.  Paul really did it so well. The Camp is a magical place."

The Camp was recently featured on CBS Sunday Morning.

Concussion Dangers Continue to Resonate in High School Sports

Nearly 450 Idaho prep athletes who competed last fall in football, soccer and volleyball were held out of games or missed practice because of confirmed or potential concussions, according to a new survey reported by the Associated Press. The survey was conducted by the Boise-based Idaho High School Activities Association, the governing body for all prep sports and high schools statewide. The survey was sent to all schools, but data compiled in the findings are based on responses from just 45 percent, or 68, schools from all competitive class levels.

Football was by far the leading sport for missed games or practices, with 307 football players missing action during the season last fall, according to a story published Friday in the Idaho Statesman. Girls soccer ranked second, followed by boys soccer and volleyball.

A recent study in Massachusetts found that 28 percent of high school athletes in the state have shown regression in their cognitive abilities after moderate exertion once returning to the playing field too soon following a concussion. The study highlighted that high school student-athletes who have suffered concussions are returning to the playing field before their brain has fully recovered.

The study, conducted by neuropsychologist Neal McGrath of Brookline, Mass., looked at 54 athletes in football, soccer and hockey who suffered head injuries. McGrath told the Boston Globe that the findings suggest more oversight is needed in regard to when athletes can return to the field following a concussion. The study is schedule to be published in the upcoming issue of Brain Injury.

The findings come on the heels of the Boston Globe’s findings last October that almost 3,000 students in Massachusetts schools suffered concussions while playing sports during the 2011-12 school year.

Connecticut was one of the first states in the nation to adopt a concussion law,

following Oregon and Washington, which implemented similar statutes in 2009. Connecticut's concussion law was signed by Gov. M. Jodi Rell on May 19, 2010 and became effective July 1, 2010. The law is in place to prevent student-athletes from participating in games after suffering head injuries.  Main provisions include:

• All coaches holding a coaching permit issued by the State Board of Education are required to take a three-hour concussion training course

• Annually, coaches are expected to review new information provided by the State Board of Education

• Every five years after the initial training, coaches must complete a refresher course

• Any athlete who exhibits signs or symptoms of a concussion must be removed from play

• Athletes will not be permitted to return to play until they have received written medical clearance from a qualified medical provider

• Coaching permits may be revoked if coaches are in violation of these provisions

Connecticut state law requires all coaches to take a concussion management course prior to the start of their season.

The web site Masters in Health Care has prepared an extensive infographic with nationwide data highlighting the prevalence of concussions and symptoms to keep a watchful eye for.

The Centers for Disease Control and Prevention (CDC) has developed a web page with information about concussions and injury prevention.  Heads Up: Concussion in Youth Sports is a free, online course available to coaches, parents, and others helping to keep athletes safe from concussion.

It features interviews with leading experts, dynamic graphics and interactive exercises, and compelling storytelling to help recognize a concussion and know how to respond.